FOUNDED: 2012
MISSION:
Fighting Granulosa Cell Tumor with Information, Advocacy, Collaboration, Community and Research.
NON-PROFIT:
California Non-Profit #C3512672
501(c)3 EIN #90-0899458
CARE-FOCUSED SERVICES:
Medical Advocacy: We provide advocacy for women with all stages of GCT, including those requiring palliative care. We specialize in technical and imaging advocacy to help patients better understand their treatment and data.
Case Management/Coordination:
We work with healthcare providers to coordinate care for women with GCT.
Caregiver Support: We provide support and education for caregivers of women with GCT.
Social Media: We post GCT‐ and cancer‐related information via Facebook, Twitter, LinkedIn, and other social
media services. Look for “stopgct” at your favorite service, follow us, and join the discussion!
Patient Education: We work with patients to help them become strong Self‐Advocates. Managing GCT is a long‐term effort.
Patients/Advocates Training Students: We participate in training programs for future healthcare professionals to help improve understanding of GCT. If you need a GCT speaker, please contact us.
Physician Referrals: We work with patients to help them find physician referrals and 2nd opinions.
Patient Connect: We connect women with GCT who want to talk to other survivors.
Educational Resources: We create and provide educational resources to try to help patients and physicians maximize the quality of care
RARE DISEASE RESEARCH EFFORTS
StopGCT has a multi‐pronged, translational research philosophy. We are working to acquire resources and grants to develop and fund targeted research to improve understanding of and treatment for GCT. StopGCT’s goal is to break down barriers to Rare Disease Research by linking patients, medical institutions, pharmaceutical companies, government
organizations (NIH, etc.), the health industry, and other foundations in order to improve care. StopGCT’s areas of interest for research include: Advanced Imaging, Hormonal Therapy, Chemotherapy, Imaging, Pathology, Cell Line Creation, Genome Sequencing, Treatment Intervention, and Palliative Care. If you would like to collaborate and/or fund StopGCT’s research efforts, please contact us! We would love to hear from you!